AHD is a rare neurological disorder that develops in childhood, usually before the child is 18 months old. It is characterized by recurrent episodes of paralysis that affect different parts of the body at different times, lasting for a few hours or several days, often resolving after sleep. Affected children display a variety of movement disorders that may include seizures, as well as problems with walking and balance. Most children do not have a family history of the disorder, but recent DNA studies have shown mutations in several genes, some of which are also associated with other familial disorders.
Meg is the daughter of fellow Rotarian Steve Turner; she and Bill will talk about AHC and how it affects their daughter, Emory. They are organizing a walk to raise money for the research and to treat AHC; it will take place at Tilles Park on September 16.